It was one of those mind-numbing moments.
A blow to the gut, an impact you can hear reverberating in your head before you feel a fist actually connect with your pelvis. One of your ‘elusive’ league of people sharing a long overdue secret- over a cup of coffee- causing your breath to catch and not slush out.
You recall this girl clearly from your college days; she was always someone who intimidated you for her sheer, unadulterated ‘goodness’ and unlimited reserves of energy. You admitted to her later on that you were even a tad jealous of her ability to not hold a grudge, to be pure and un-scheming in every ounce of her being, even when she was trying to get back at the world she couldn’t help being well-intentioned about it. You were jealous, because you had to work at this ability, you read books, meditated and constantly checked yourself with every conversation you partook in… but she was a natural.
She changed over the years, she lost some of her painful naiveté but she still couldn’t manage to lose that wholesome goodness. She told you that she really tried to ‘get tough’, because the world was a shitty place and the only way to manage one’s shitty life was give back as good as you got… but she still couldn’t shake her skin. You realise now that even though you both always craved being more spontaneous and worldly, you also nurtured your idealism because you felt it made you special in some way. This is what connected you, that you were both outsiders looking into the lives of others while you were so busy dealing with your lack of one. Your lives always revolved around the people in them and much as you both craved making them ‘all about you’ even your efforts were misguided because you tried to find a version of ‘you’ that would please everyone and that was safe. You realised that you were immensely grateful to a God you aren’t sure you believe in, for the opportunity to keep her in your life.
There are not many people you keep. You are one of those beings who float through life with a suitcase in your heart, you fill the case with books and music and colour but very seldom with people. People tend to zap you of your originality, so you keep very few from your travels. You allow them to permeate your skin and your thoughts just as long as you have to and for as long as they are there. The moment they aren’t, you shed them. They are only a handful that you go back and carry with you and you don’t regret this. ‘Your’ people, few and far between as they may be, are yours - you trust them and they matter. They don’t just fill vacuums in your landscape, they are part of it. You love ‘your people’ and you didn’t realise until that moment that she was really one of them. She wasn’t just someone you bounced ideas off of and enjoyed for her soft company. Somewhere along the lines you had pocketed her in your travelling bag and now you were scared that it might be too late to tell her.
She is one of the few who inspires you, you seldom admit to that.
She tells you about the cloud that has been hanging over her head for years, of how the disease was a shadow that had kept her from living or being who she was. You recognise the sentiment and the emotion but not the practicality of it. You have lived under emotional shadows, you have lived under abuse, but not this kind. Huntington’s Chorea is like a ticking time bomb. Living without getting tested for years means that every conversation is followed by the ‘what if’ of a 50% chance of having it. You finally realise what makes her who she is, not the disease, but the fact that she had a problem to confront and she does it on a daily basis. You know this because you were at your strongest when you were actually battling your demons, as is she. You know very well what separates you from the people in your life: Your Life. Extreme lives make extreme individuals, the good, the bad and the ugly. You have been all three at some point. It isn’t a pity party, it just is. ‘Normal’ concerns, normal passions, normal emotions have never been something you could relate to, because your life was never normal. This has made you who you are and it defines you by how you have dealt with it. You now recognise her strength somewhat, but hers is immense because it isn’t just emotional – it is mental, and physical and spiritual. You got out and are healing, she is still figuring out if she even can heal.
You are not sure if you are envious or ecstatic about the other remarkable friend in her life who is showing her how to live, seemingly for the first time. Every day you see her try something new, she is wearing make-up now, new shoes, new clothes and a new outlook. She smiles for herself more, gone is the embarrassed half-smile she earlier used to placate others around her. She is finally becoming herself and it is thrilling to watch. You have been there, you remember that place - where colours were brighter and every day meant new possibilities, that blossoming phase and you are happier for her than you can conceive. You realise that you are grateful to her other friend, she is a miracle worker, your jealousy stems from the fact that you found yourself alone but she has help. Then again, you always choose to do things alone and crying over spilt milk is foolish.
She tells you that she has finally decided to get tested and no matter what the result she will finally live her life the way she wants to. You realise now that you are overjoyed that she got nominated for the scholarship you were rejected for, she deserves it for something you didn’t, and that earlier twinge of ‘but why not me’ that you felt when you got your letter has completely vanished.
You will both be starting over this year and you are sure of it this time.
It WILL HAPPEN.
It will happen because she has earned it, every day of her 29 years, she has earned it by simply being and you have by learning to ‘be’.
A blow to the gut, an impact you can hear reverberating in your head before you feel a fist actually connect with your pelvis. One of your ‘elusive’ league of people sharing a long overdue secret- over a cup of coffee- causing your breath to catch and not slush out.
You recall this girl clearly from your college days; she was always someone who intimidated you for her sheer, unadulterated ‘goodness’ and unlimited reserves of energy. You admitted to her later on that you were even a tad jealous of her ability to not hold a grudge, to be pure and un-scheming in every ounce of her being, even when she was trying to get back at the world she couldn’t help being well-intentioned about it. You were jealous, because you had to work at this ability, you read books, meditated and constantly checked yourself with every conversation you partook in… but she was a natural.
She changed over the years, she lost some of her painful naiveté but she still couldn’t manage to lose that wholesome goodness. She told you that she really tried to ‘get tough’, because the world was a shitty place and the only way to manage one’s shitty life was give back as good as you got… but she still couldn’t shake her skin. You realise now that even though you both always craved being more spontaneous and worldly, you also nurtured your idealism because you felt it made you special in some way. This is what connected you, that you were both outsiders looking into the lives of others while you were so busy dealing with your lack of one. Your lives always revolved around the people in them and much as you both craved making them ‘all about you’ even your efforts were misguided because you tried to find a version of ‘you’ that would please everyone and that was safe. You realised that you were immensely grateful to a God you aren’t sure you believe in, for the opportunity to keep her in your life.
There are not many people you keep. You are one of those beings who float through life with a suitcase in your heart, you fill the case with books and music and colour but very seldom with people. People tend to zap you of your originality, so you keep very few from your travels. You allow them to permeate your skin and your thoughts just as long as you have to and for as long as they are there. The moment they aren’t, you shed them. They are only a handful that you go back and carry with you and you don’t regret this. ‘Your’ people, few and far between as they may be, are yours - you trust them and they matter. They don’t just fill vacuums in your landscape, they are part of it. You love ‘your people’ and you didn’t realise until that moment that she was really one of them. She wasn’t just someone you bounced ideas off of and enjoyed for her soft company. Somewhere along the lines you had pocketed her in your travelling bag and now you were scared that it might be too late to tell her.
She is one of the few who inspires you, you seldom admit to that.
She tells you about the cloud that has been hanging over her head for years, of how the disease was a shadow that had kept her from living or being who she was. You recognise the sentiment and the emotion but not the practicality of it. You have lived under emotional shadows, you have lived under abuse, but not this kind. Huntington’s Chorea is like a ticking time bomb. Living without getting tested for years means that every conversation is followed by the ‘what if’ of a 50% chance of having it. You finally realise what makes her who she is, not the disease, but the fact that she had a problem to confront and she does it on a daily basis. You know this because you were at your strongest when you were actually battling your demons, as is she. You know very well what separates you from the people in your life: Your Life. Extreme lives make extreme individuals, the good, the bad and the ugly. You have been all three at some point. It isn’t a pity party, it just is. ‘Normal’ concerns, normal passions, normal emotions have never been something you could relate to, because your life was never normal. This has made you who you are and it defines you by how you have dealt with it. You now recognise her strength somewhat, but hers is immense because it isn’t just emotional – it is mental, and physical and spiritual. You got out and are healing, she is still figuring out if she even can heal.
You are not sure if you are envious or ecstatic about the other remarkable friend in her life who is showing her how to live, seemingly for the first time. Every day you see her try something new, she is wearing make-up now, new shoes, new clothes and a new outlook. She smiles for herself more, gone is the embarrassed half-smile she earlier used to placate others around her. She is finally becoming herself and it is thrilling to watch. You have been there, you remember that place - where colours were brighter and every day meant new possibilities, that blossoming phase and you are happier for her than you can conceive. You realise that you are grateful to her other friend, she is a miracle worker, your jealousy stems from the fact that you found yourself alone but she has help. Then again, you always choose to do things alone and crying over spilt milk is foolish.
She tells you that she has finally decided to get tested and no matter what the result she will finally live her life the way she wants to. You realise now that you are overjoyed that she got nominated for the scholarship you were rejected for, she deserves it for something you didn’t, and that earlier twinge of ‘but why not me’ that you felt when you got your letter has completely vanished.
You will both be starting over this year and you are sure of it this time.
It WILL HAPPEN.
It will happen because she has earned it, every day of her 29 years, she has earned it by simply being and you have by learning to ‘be’.